Cent Eur J Nurs Midw 2015, 6(4):336-342 | DOI: 10.15452/CEJNM.2015.06.0025

Self-help group and the quality of life of patients with multiple sclerosis - Pilot study

Anna Eliášová*, Ľudmila Majerníková, Anna Hudáková, Mária Kaščáková
Department of Nursing, Faculty of Health Care, University of Prešov in Prešov, Slovakia

Aim: The goal of the pilot study was to compare the quality of life of patients with multiple sclerosis in the Presov region with or without the support of a self-help group.

Design: The character of this pilot study on patients with MS was related to the use of self-help groups and their impact on the assessment of the quality of life of the respondents, with the help of a questionnaire (WHOQOL-BREF).

Methods: The research was carried out in the Prešov region with the help of the standardized WHOQOL-BREF questionnaire. Ninety-one patients with MS participated in the pilot study (46 respondents attended a self-help group and 35 did not).

Results: The groups, when compared, aided by the statistically evaluated WHOQOL-BREF domains, were found to show significant differences in their evaluation of quality of life in three domains: domain one: physical health; domain two: surviving; domain three: social relations. Better scores were achieved in these domains by those who attended a group. In the physical sphere, we noticed significant differences in sleep quality, and sexual satisfaction (p < 0.001), while in social and economic areas, there were significant differences in satisfaction with personal relationships (p < 0.001), and economic circumstances (p < 0.01), self-contentment (p < 0.01), and coping with negative feelings (p < 0.05).

Conclusion: Patients with multiple sclerosis can live normal lives provided they are supported by their families, friends, health care professionals, and self-help groups.

Keywords: multiple sclerosis, quality of life, health care, self-help group

Received: March 26, 2015; Accepted: July 2, 2015; Published: September 30, 2015  Show citation

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Eliášová A, Majerníková Ľ, Hudáková A, Kaščáková M. Self-help group and the quality of life of patients with multiple sclerosis - Pilot study. Central European Journal of Nursing and Midwifery. 2015;6(4):336-342. doi: 10.15452/CEJNM.2015.06.0025.
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    References

    1. Bennett K, Reynolds J, Christensen H, Griffiths KM. Ehub: an online self-help mental health service in the community. Medical Journal of Australia. 2010;192(11):48-52. Go to original source... Go to PubMed...
    2. Bútora M. Překročit svůj stín. 1. vyd. Praha: Avicenum; 1991. (in Czech)
    3. Dooks P, McQuestion M, Goldstein D, Molassiotis A. Experiences of patients with laryngectomies as they reintegrate into their community. Supportive Care in Cancer. 2012;20(3):489-498. Go to original source... Go to PubMed...
    4. Dragomirecká E, Bartoňová J. WHOQOL-BREF, WHOQOL100 : World Health Organization Quality of Life Assessment : příručka pro uživatele české verze dotazníků kvality života Světové zdravotnické organizace. 1. vyd. Praha: Psychiatrické centrum Praha; 2006. (in Czech)
    5. Gurková E. Hodnocení kvality života. Pro klinickou praxi a ošetřovatelský výzkum. 1. vyd. Praha: Grada; 2011. (in Czech)
    6. Heesen, C, Böhm J, Reich C, Kasper J, Goebel M, Gold SM. Patient perception of bodily functions in multiple sclerosis: gait and visual function are the most valuable. Multiple Sclerosis. 2008;11(14):988-991. Go to original source... Go to PubMed...
    7. Hloch S, Magurová D, Valíček J, Kľoc J, Kozak D. Hydroabrazívne delenie v ortopédii: experimentálna štúdia možnosti aplikácie hydroabrazívneho delenia v ortopédii s cieľom zvýšiť kvalitu ošetrovateľského manažmentu. Prešov: Sergej Hloch, 2011. (in Slovak)
    8. Kang HS, Kim WO, Cho KJ, Jeong Y. Development, implementation and evaluation of a new self-help programme for mothers of haemophilic children in Korea: A pilot study. Haemophilia. 2010;16(1):130-135. Go to original source... Go to PubMed...
    9. Kantorová E, Kurča E, Michalik J. Hodnotenie kvality života pacientov so sclerosis multiplex. Neurologie pro praxi. 2012;13(4):211-214. (in Slovak)
    10. Kobelt G, Texier-Richard B, Lindgren P. The long term cost of multiple sclerosis in France and potential changes with disease-modifying interventions. Multiple Sclerosis. 2009;16(15):741-751. Go to original source... Go to PubMed...
    11. Majernikova L, Jakabovičová A, Obročníková A. Úloha ošetrovateľstva v svojpomocných kluboch a skupinách. MOLISA 5: medicínsko-ošetrovateľské listy Šariša. 2008;(1):134-136. (in Slovak) Go to original source...
    12. Mohapl P. Úvod do psychologie nemoci a zdraví. 1. vyd. Olomouc: Vydavateľstvo Univerzity Palackého, 1992. (in Czech)
    13. Ondrejka I, Adamicová K. Komplexne o kvalite života pacienta. Sestra. 2003;II(8-9):16-18. (in Slovak)
    14. Švehlíková L, Heretik A. Kvalita života - o čom to hovoríme? Psychiatria-psychoterapia-psychosomatika. 2008;15(3):194-198. (in Slovak)
    15. Timko C, Cronkite RC, McKellar J, Zemore S, Moos RH. Dually diagnosed patients' benefits of mutual-help groups and the role of social anxiety. Journal of Substance Abuse Treatment. 2013;44(2):216-223. Go to original source... Go to PubMed...

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