Cent Eur J Nurs Midw 2024, 15(4):2040-2052 | DOI: 10.15452/cejnm.2024.15.0023

Perspectives of parents of home mechanically ventilated children on the supply of medical aids

Yvonne Lehmann1,3, Dajana Sciortiono2,3
1 Berlin Campus for Health Professions Education, Germany
2 German Hospital Federation, Germany
3 Charité – Universitätsmedizin Berlin, Institute of Health and Nursing Science, Germany

Aim: The supply of medical aids and training in their use are essential for home mechanically ventilated (HMV) children and their parents.

Design: A qualitative interview study was performed to gain deeper insights into parents’ views and to derive sound recommendations for designing this form of care with the most common need for multiple medical aids (devices and accessories).

Methods: Twelve problem-centred interviews were conducted with parents of children receiving HMV and subjected to qualitative content analysis.

Results: Parents found ventilation-specific medical devices and accessories to be generally reliable, but not always well designed for children or well selected. Parents also identified challenges and problems regarding structural, procedural and personal aspects of the supply of medical aids. In particular, deficits in task performance and cooperation between stakeholders and involved healthcare institutions became apparent. When parents or home care nurses lacked competence in using the technology, unsafe situations easily arose.

Conclusion: The study highlighted the need for further developments in the supply of ventilation-associated medical aids. Furthermore, the need for qualified professionals and for educational strategies to promote safety amongst parents as users of medical aids in home care became clear.

Keywords: devices, home mechanical ventilation, parents, qualitative research, supply of medical aids

Received: July 30, 2024; Revised: November 13, 2024; Accepted: November 23, 2024; Published: December 9, 2024  Show citation

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Lehmann Y, Sciortiono D. Perspectives of parents of home mechanically ventilated children on the supply of medical aids. Central European Journal of Nursing and Midwifery. 2024;15(4):2040-2052. doi: 10.15452/cejnm.2024.15.0023.
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