Cent Eur J Nurs Midw 2018, 9(4):932-938 | DOI: 10.15452/CEJNM.2018.09.0026
End-of-life preferences of cardiac patients
- 1 Cardiovascular Center for Adults, Ba»a Regional Hospital, Zlín, Czech Republic
- 2 Department of Internal Medicine I - Cardiology, University Hospital Olomouc, Czech Republic
- 3 Institute of Biostatistics and Analyses, Masaryk University, Brno, Czech Republic
- 4 Center for Palliative Care, Prague, Czech Republic
- 5 Landeskrankenhaus Salzburg, Universitätsklinik für Anästhesiologie, perioperative Medizin und allgemeine Intensivmedizin, Salzburg, Austria
Aim: To address the wishes of patients with cardiovascular disease in relation to their end-of-life stage - an issue that has long been regarded taboo.
Design: Cross-sectional study.
Methods: After an initial interview, 127 patients completed an anonymous questionnaire: 86 patients (67.7%) hospitalized in a cardiology department, and 41 patients (32.3%) on follow-up at an outpatient clinic. The mean age was 67 ± 13 years; 60.6% were male; 51.7% were NYHA class III. Seventeen patients (13.4%) had an implantable cardioverter-defibrillator.
Results: The patients most concerned about their future were those aged 65-79 years (p = 0.044); patients who felt they were not receiving sufficient information (p = 0.008); hospitalized patients (p < 0.001); or those with a known diagnosis of less than one month, or over one year (p = 0.038). Seventy-one patients (57.7%) would prefer to die at home, although this would mean receiving less health care than in hospital. Only 19 patients (15.4%) expressed a preference for extension of life over quality of life. Twenty-nine patients (23.6%) would contemplate having their cardioverter-defibrillator deactivated. 90.2% subjects considered it important for physicians to be interested in the views of patients regarding these issues.
Conclusion: Despite the contrast with practice in some countries, most patients with cardiovascular disease would appreciate physicians being interested in their attitudes to the issue of end of life. An adequate level of information would help reduce patient concerns about their futures.
Keywords: advanced care, cardiovascular disease, communication, decision-making, end-of-life
Received: May 22, 2018; Accepted: October 1, 2018; Published: September 30, 2018 Show citation
References
- Berlacher K, Arnold RM, Reitschuler-Cross E, Teuteberg J, Teuteberg W. The impact of communication skills training on cardiology fellows' and attending physicians' perceived comfort with difficult conversations. Journal of Palliative Medicine. 2017;20(7):767-769.
Go to original source...
Go to PubMed...
- Brunner-La Rocca HP, Rickenbacher P, Muzzarelli S, Schindler R, Maeder MT, Jeker U, Kiowski W, Leventhal ME, Pfister O, Osswald S, Pfisterer ME, Rickli H; TIMECHF Investigators. End-of-life preferences of elderly patients with chronic heart failure. European Heart Journal. 2012;33(6):752-759.
Go to original source...
Go to PubMed...
- Buchanan A, Tan RS. Congestive heart failure in elderly patients. The treatment goal is improved quality, not quantity, of life. Postgraduate Medicine. 1997;102(4):207-208, 211- 215.
Go to original source...
Go to PubMed...
- Christ M, Störk S, Dörr M, Heppner HJ, Müller C, Wachter R, Riemer U; Trend HF Germany Project. Heart failure epidemiology 2000-2013: insights from the German Federal Health Monitoring System. European Journal of Heart Failure. 2016;18(8):1009-1018.
Go to original source...
Go to PubMed...
- Cosgriff JA, Pisani M, Bradley EH, O'Leary JR, Fried TR. The association between treatment preferences and trajectories of care at the end-of-life. Journal of General Internal Medicine. 2007;22(11):1566-1571.
Go to original source...
Go to PubMed...
- Etkind SN, Bristowe K, Bailey K, Selman LE, Murtagh FE. How does uncertainty shape patient experience in advanced illness? A secondary analysis of qualitative data. Palliative Medicine. 2017;31(2):171-180.
Go to original source...
Go to PubMed...
- Fried TR, Byers AL, Gallo WT, Van Ness PH, Towle VR, O'Leary JR, Dubin JA. Prospective study of health status preferences and changes in preferences over time in older adults. Archives of Internal Medicine. 2006;166(8):890-895.
Go to original source...
Go to PubMed...
- Goodlin SJ. Palliative care in congestive heart failure. Journal of the American College of Cardiology. 2009;54(5):386-396.
Go to original source...
Go to PubMed...
- Gordon NA, O'Riordan DL, Dracup KA, De Marco T, Pantilat SZ. Let us talk about it: heart failure patients' preferences toward discussions about prognosis, advance care planning, and spiritual support. Journal of Palliative Medicine. 2017;20(1):79-83.
Go to original source...
Go to PubMed...
- Harding R, Selman L, Beynon T, Hodson F, Coady E, Read C, Walton M, Gibbs L, Higginson IJ. Meeting the communication and information needs of chronic heart failure patients. Journal of Pain and Symptom Management. 2008;36(2):149-156.
Go to original source...
Go to PubMed...
- Kojecký V, Coufal Z. Klinicky manifestní gastrointestinální krvácení u koronarografovaných nemocných. Vnitřní lékařství. 2007;53(2):147-150. (in Czech)
Go to PubMed...
- Krumholz HM, Phillips RS, Hamel MB, Teno JM, Bellamy P, Broste SK, Califf RM, Vidaillet H, Davis RB, Muhlbaier LH, Connors AF Jr, Lynn J, Goldman L. Resuscitation preferences among patients with severe congestive heart failure: results from the SUPPORT project. Study to understand prognoses and preferences for outcomes and risks of treatments. Circulation 1998;98(7):648-655.
Go to original source...
Go to PubMed...
- Lesny P, Luknar M, Matejka M, Varga I, Solik P, Wimmerova S, Goncalvesova E. Ten-year survival and prognostic markers in one thousand patients with advanced heart failure. A single-centre analysis. Biomedical Papers of the Medical Faculty of Palacký University, Olomouc, Czech Republic. 2016;160(2):257-262.
Go to original source...
Go to PubMed...
- Lewis EF, Johnson PA, Johnson W, Collins C, Griffin L, Stevenson LW. Preferences for quality of life or survival expressed by patients with heart failure. The Journal of Heart and Lung Transplantation. 2001;20(9):1016-1024.
Go to original source...
Go to PubMed...
- Sidney S, Quesenberry CP Jr, Jaffe MG, Sorel M, NguyenHuynh MN, Kushi LH, Go AS, Rana JS. Recent trends in cardiovascular mortality in the United States and public health goals. JAMA Cardiology. 2016;1(5):594-599.
Go to original source...
Go to PubMed...
- Stanek EJ, Oates MB, McGhan WF, Denofrio D, Loh E. Preferences for treatment outcomes in patients with heart failure: symptoms versus survival. Journal of Cardiac Failure. 2000;6(3):225-232.
Go to original source...
Go to PubMed...
- Stevenson LW, Hellkamp AS, Leier CV, Sopko G, Koelling T, Warnica JW, Abraham WT, Kasper EK, Rogers JG, Califf RM, Schramm EE, OʼConnor CM. Changing preferences for survival after hospitalization with advanced heart failure. Journal of the American College of Cardiology. 2008;52(21):1702-1708.
Go to original source...
Go to PubMed...
- Teno JM, Gozalo PL, Bynum JP, Leland NE, Miller SC, Morden NE, Scupp T, Goodman DC, Mor V. Change in endof-life care for Medicare beneficiaries: site of death, place of care, and health care transitions in 2000, 2005, and 2009.
- JAMA. 2013;309(5):470-477.
Go to original source...
- ©vancara J, Sláma O, Kabelka L, Jarkovský J, Klika P, Loučka M, Komenda M, Duąek L. Národní datová základna paliativní péče [online]. Praha: Ústav zdravotnických informací ČR, 2016 [cit. 2018-11-04]. Available from: http://www.paliativnidata.cz/browser/web/mortalitnidata/misto-umrti/ (in Czech)
- Virdun C, Luckett T, Lorenz K, Davidson PM, Phillips J. Dying in the hospital setting: a meta-synthesis identifying the elements of end-of-life care that patients and their families describe as being important. Palliative Medicine. 2017;31(7):587-601.
Go to original source...
Go to PubMed...
- Willmott L, White B, Gallois C, Parker M, Graves N, Winch S, Callaway LK, Shepherd N, Close E. Reasons doctors provide futile treatment at the end of life: a qualitative study. Journal of Medical Ethics. 2016;42(8):496-503.
Go to original source...
Go to PubMed...
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