Cent Eur J Nurs Midw 2014, 5(2):54-62
Self-care in patients with Parkinson's disease
- Department of Nursing, Jessenius Medical Faculty in Martin, Comenius University in Bratislava, Slovakia
Aim: The aim of research was to describe self-care changes in two patients with Parkinson's disease (PD) who were living in the home environment.
Methods: For the method of data collection was used semi-structured interviews, structured observation, medical record's analysis and chosen measuring tools. The main source of information was two patients diagnosed for PD. The secondarily source of information was the family relatives and the medical records.
Results: Principally in relation with primary symptoms (with motor impairments) of Parkinson's disease were identified patient's problems in areas activities of daily living (ADL) and instrumental activities of daily living (IADL).
Conclusion: Patients from initial stages of Parkinson's disease are confronted with reduction of functional status with partial loss of self-sufficiency in realization ADL and IADL. Nursing care must be oriented at maintaining the maximum extent of self-sufficiency already in the early stages of Parkinson's disease.
Keywords: self-care, ADL, IADL, Parkinson's disease, case study
Received: February 17, 2014; Accepted: March 19, 2014; Published: September 30, 2014 Show citation
References
- American Medical Directors Association (AMDA). NGC guideline: Parkinson´s disease in the long-term care setting. Columbia: American Medical Directors Association (AMDA); 2010 [cited 2013 Nov 30]. Available from: http://www.guideline.gov/content.aspx?id=32493
- Andersson I, Sidenvall B. Case studies of food shopping, cooking and eating habits in older women with Parkinson's disease. Journal of Advanced Nursing. 2001;35(1):69-78.
Go to original source...
Go to PubMed...
- Bareš M. Diagnostika a klinické příznaky Parkinsonovy nemoci. Neurologie pro praxi. 2001;2(1):22-24. (in Czech)
- Bareš M. Pozdní hybné komplikace Parkinsonovy nemoci - wearing-off a další motorické fluktuace. Neurologie pro praxi. 2008;9(2):96-99. (in Czech)
- Benetin J, Cibulčík F, Turčáni P, Valkovič P. Ako žiť s Parkinsonovou chorobou. 1. vyd. Bratislava: Zuzana Číčelová; 2007. (in Slovak)
- Cianci H, Cloete L, Gardner J, Trail M, Wichmann R. Activities of Daily Living: Practical Pointers for Parkinson´s Disease. National Parkinson Foundation; 2006 [cited 2013 Nov 02]. Available from: http://www3.parkinson.org/site/DocServer/Practical_Pointers.pdf
- Clinical guideline for the management of inpatient´s with Parkinson´s Disease. UK: Royal Cornwall Hospitals; 2013 [cited 2013 Dec 02]. Available from: http://www.rcht.nhs.uk/DocumentsLibrary/RoyalCornwallHospitalsTrust/Clinical/Eldercare/ParkinsonsDisease.pdf
- Hobson JP, Edwards NI, Meara RJ. The Parkinson´s Disease Activities of Daily Living Scale: a new simple and brief subjective measure of disability of Parkinson´s disease. Clinical Rehabilitation. 2001;15(3):241-246.
Go to original source...
Go to PubMed...
- Fange A, Iwarsson S. Changes in ADL dependence and aspects of usability following housing adaptation: A longitudinal perspective. American Journal of Occupational Therapy. 2005;59(3):296-304.
Go to original source...
Go to PubMed...
- Gavora P. Sprievodca metodológiou kvalitatívneho výskumu. Bratislava: REGENT; 2006. p. 31-34. (in Slovak)
- Grimes D, Gordon J, Snelgrove B, Lim-Carter I, Fon E, Martin W, Wieler M, Suchowersky O, Rajput A, Lafontaine AL, Stoessl J, Moro E, Schoffer K, Miyasaki J, Hobson D, Mahmoudi M, Fox S, Postuma R, Kumar H, Jog M. Canadian Guidelines on Parkinson´s Disease. Canadian Journal of Neurological Sciences. 2012;39(4):S1-S30.
- Guidelines for the management of patients with Parkinson´s disease admitted acutely. Ashford and St. Peter´s Hospital; 2011 [cited 2013 Oct 12]. Available from: http://www.ashfordstpeters.org.uk/attachments/1965_Guidelines%20for%20Parkinsons%20Disease.pdf
- Hickey JV. The clinical practice of neurological and neurosurgical nursing. 6th ed. Lippincott Williams and Wilkins; 2009.
- Holroyd S, Currie L, Wooten F. Depression is associated with impairment of ADL, no motor function in Parkinson´s disease. Neurology. 2005;64(12):2134-2135.
Go to original source...
Go to PubMed...
- Hort J, Rusina R, Brabec M, Brázdil M, Fanfrdlová Z, Hort V, Jeřábek J, Klempířová O, Klempíř J, Kocourková J, Kolář P, Kuna M, Pelikán E, Pretl M, Rektorová I, Roth J, Sedláčková S, Špíšek R, Urbancová K, Zuna J, Žantovská E. Paměť a její poruchy. Paměť z hlediska neurovědního a klinického. Praha: MAXDORF; 2007. (in Czech)
- Jankovic J. Parkinson's disease: clinical features and diagnosis. Journal of Neurology, Neurosurgery and Psychiatry. 2008;79(4):368-376.
Go to original source...
Go to PubMed...
- Kaňovský P. Léčba komplikované Parkinsonovy nemoci. Klinická Farmakologie a Farmacie. 2004;18(4):215-217. (in Czech)
Go to original source...
Go to PubMed...
- Lawton MP, Brody EM. Assessment of Older People: Self-Maintaining and Instrumental Activities of Daily Living. Gerontologist. 1969;9(3):179-186.
Go to original source...
Go to PubMed...
- Lowenstein N, Tickle-Degnen L. Developing an Occupational Therapy Home Program for Patients with Parkinson´s Disease. In: Trail M, Protas EJ, Lai EC, editors. Neurorehabilitation in Parkinson´s Disease. SLACK Incorporated; 2008. p. 231-244.
- Mahoney FI, Barthel DW. Functional evaluation: The Barthel Index. Maryland State Medicine Journal. 1965;14(2):61-65.
Go to original source...
- Masopust J, Vališ M. Psychofarmakoterapie psychických komplikací Parkinsonovy nemoci. Neurológia pre prax. 2004;5(3):153-156. (in Czech)
- Masopust J, Vališ M. Léčba psychických komplikací Parkinsonovy nemoci. Psychiatrie pro praxi. 2003;4(6):254-258. (in Czech)
- National Parkinson Foundation. Bathroom Safety Tips. National Parkinson Foundation; 2014 [cited 2014 Jan 04]. Available from: http://www.parkinson.org/Parkinson-s-Disease/LivingWell/Safety-at-Home/Bathroom-Safety-Tips.
- Parkinson´s Disease - National Clinical Guideline for Diagnosis and Management in Primary and Secondary Care. NICE Clinical Guideline. London: Royal College of Physicians; 2006 [cited 2013 Nov 30]. Available from: http://www.nice.org.uk/nicemedia/live/10984/30088/30088.pdf
- Parkinson´s Disease Society. Looking after your bladder and bowels in Parkinsonism. Advice for people with Parkinsonism and their careers. United Kingdom: Parkinson's Disease Society; 2008 [cited 2013 Dec 12]. Available from: http://www.apfeldorffoundation.org/uploads/6/0/3/9/6039876/170_lookingafter_your_bladder_and_bowels.pdf
- Pirogovsky E, Woods SP, Filoteo JV, Gilbert PE. Prospective Memory Deficits are Associated with Poorer Everyday Functioning in Parkinson's Disease. Journal of the International Neuropsychological Society. 2012;18(6):986-995.
Go to original source...
Go to PubMed...
- Pretzer-Aboff I, Galik E, Resnick B. Parkinson's Disease: Barriers and Facilitators to Optimizing Function. Rehabilitation Nursing. 2009;34(2):55-63.
Go to original source...
- Preiss M, Kučerová H, Fanfrdlová, Z, Javůrková A, Klempíř J, Krivošíková M, Kučerová H, Kulišťák P, Mohaplová M, Nováková O, Preiss J, Roth J, Růžička E, Špačková N, Telecká S. Neuropsychologie v neurologii. 1 vyd. Praha: Grada Publishing; 2006. (in Czech)
- Ressner P, Šigutová D. Léčebná rehabilitace u Parkinsonovy nemoci. Neurologie pro praxi. 2001;2(1):31-35. (in Czech)
- Richter D, Benetin J. Odporúčania pre farmakologickú liečbu Parkinsonovej choroby. Ambulantná terapia: lekársky časopis. 2006;3(1):26-29. (in Czech)
- Růžička E, Roth J. Parkinsonova nemoc - Doporučené postupy pro praktického lékaře. Odborná společnost neurologická; 2002 [cited 2014 Jan 02]. Available from: http://www.cls.cz/seznam-doporucenych-postupu (in Czech)
- Seidl Z, Obenberger J. Neurologie pro studium i praxi. 1. vyd. Praha: Grada Publishing; 2004. (in Czech)
- Shulman LM, Gruber-Baldini AL, Anderson KE, Vaughan CG, Reich SG, Fishman PS, Weiner WJ. The evolution of disability in Parkinson disease. Movement disorders. 2008;23(6):790-796.
Go to original source...
Go to PubMed...
- Shwartz-Peterman S. Parkinsonova nemoc, 300 tipů a rad, jak ji zvládat lépe. Praha: Grada Publishing; 2008. (in Czech)
- Schrag A, Selai C, Jahanshahi M, Quinn NP. The E Q-5D - a quality of life measure - is a useful instrument to measure quality of life in patients with Parkinson´s disease. Journal of Neurology, Neurosurgery and psychiatry. 2000;69(1):67-73.
Go to original source...
Go to PubMed...
- Schenkman M, Butler RB. A model for multisystem evaluation, interpretation, and treatment of individuals with neurologic dysfunction. Physical Therapy. 1989;69(7):538-547.
Go to original source...
Go to PubMed...
- Skelly R, Lindop F, Johnson C. Multidisciplinary care of patient with Parkinson´s disease. Progress in Neurology and Psychiatry. 2012;16(2):10-12.
Go to original source...
- Thomas DJ. Case Study as a Method Research. In: Fitzpatrick JJ, Kazer MW, editors. Encyclopaedia of Nursing Research. 3th ed. New York: Springer Publishing Company. 2012. p. 39-41.
- Valkovič P. Súčasný pohľad na Parkinsonovu chorobu. Via practica. 2006;3(5):256-261. (in Slovak)
- Valkovič P. Posturálna instabilita u pacientov s Parkinsonovou chorobou a jej liečba. Neurologie pro praxi. 2009;10(6):363-368. (in Slovak)
- Valkovič P, Benetin J. Tremor z pohľadu klinického neurológa. Neurologie pro praxi. 2011;12(1):12-15. (in Slovak)
- Wressle E, Engstrand CH, Granérus AK. Living with Parkinson's disease: Elderly patients´ and relatives´ perspective on daily living. Australian Occupational Therapy Journal. 2007;54(2):131-139.
Go to original source...
- Yanko J, Avanecean D, Cartwright C, Thompson HJ. Neurologic Assessment of the Older Adult. A Guide for Nurses. 2nd ed. Glenview IL: American Association of Neuroscience Nurses; 2009 [cited 2014 Jan 11]. Available from: http://www.aann.org/pdf/cpg/aannneuroassessmentolderadult.pdf
- Žiaková K, Baška T, Bóriková I, Čáp J, Fetisovová Ž, Gurková E, Kubatka P, Kudlička J, Maďar R, Meško D, Nemčeková M, Ondrejka I, Palenčár M. Ošetrovateľstvo: teória a vedecký výskum. 2. vyd. Martin: Osveta; 2009. (in Czech)
This is an open access article distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0), which permits non-comercial use, distribution, and reproduction in any medium, provided the original publication is properly cited. No use, distribution or reproduction is permitted which does not comply with these terms.