Cent Eur J Nurs Midw 2012, 3(3):424-432
The quality of life of parents and children with asthma bronchial
- 1 Department of Nursing, Jessenius Medical Faculty in Martin, Comenius University in Bratislava, Slovakia
- 2 Clinic of children and adolescents, University Hospital in Martin, Slovakia
Aim: The aim of the research was to find out the impact of the disease and the degree of asthma control on quality of life in children with bronchial asthma and quality of life in their parents.
Methods: To collect empirical data we have used standardized questionnaires concerning quality of life - Paediatric Asthma Quality of Life Questionnaire (PAQLQ) and Paediatric Asthma Caregiver's Quality of Life Questionnaire (PACQLQ) and for the assessment of asthma control we have used questionnaire Asthma Control Questionnaire (ACQ). The results were analysed using the methods of descriptive and inductive statistics.
Results: In the sample of children studied (n = 72) we have found that 27 children (37.5%) have their disease under control and 28 children (38.9%) were i n the range of uncontrolled asthma. Total ACQ score (1.24±1.07) confirmed medium degree of asthma control (partially controlled asthma). Total score of PAQLQ questionnaire in children (5.34±1.16) indicates that children with asthma represent good quality o f life. Bronchial asthma in children had more significant influence on activities than on emotions and incidence of symptoms. Total score of PACQLQ questionnaire in parents was 4.53 ±1.07 and we have not registered differences between domains of emotions a nd activities. The research has proved that degree of asthma control has statistically significant influence on the quality of life of the child and his parents, whilst the higher the quality of life of the child, the higher the quality of life of parents.
Conclusion: The aim of comprehensive management of asthma therapy is to achieve the most optimal level of asthma control and thus to establish conditions for higher quality of live of the child and his parents. Making use of assessment tools to evaluate the quality of life it is possible to identify a significant impact of the disease on the everyday lives of children as well as parents.
Keywords: bronchial asthma, asthma control, quality of life of the child, quality of life of parents, assessment of quality of life
Published: September 30, 2012 Show citation
References
- BUSHEL, D. M., MARTIN, M. L., PARASURAMAN, B. Electronic versus paper questionnaires: a further comparison in person with asthma. Journal of Asthma. 2003, 40(7), 751762.
Go to original source...
- CANO-GARCINUNO, A. et al. Group Education on Asthma for Children and Caregivers: a Randomized, Controlled Trial Addressing Effects on Morbidity and Quality of Life. Journal of Investigational Allergology and Clinical Immunology. 2007, 17(4), 216-226.
Go to PubMed...
- COHEN, J. Statistical power analysis for the behavioral sciences. 2. ed. New York: Academic Press, 1988. 568 p.
- HRUŠKOVIČ, B. Alergia a astma v Európe. Via Practica. 2004, 1(2), 78-80.
- HRUBIŠKO, M. Astma pod kontrolou: vieme čo to je a ako na to? Ambulantná terapia. 2008, 5(1), 8-13.
- JUNIPER, E. F. et al. Identifying 'well-controlled' and 'not well-controlled' asthma using the Asthma Control Questionnaire. Respiratory Medicine. [on-line]. 2006, 100, 616-621. [cit. 2010-07-23]. Dostupné z: <http://www.ncbi.nlm.nih.gov/pubmed/16226443>.
Go to original source...
Go to PubMed...
- JUNIPER, E. F. et al. Measuring quality of life in children with asthma. Quality of Life Research. [on-line]. 1996a, 5, 3546. [cit. 2010-07-23]. Dostupné z: <http://www.ncbi.nlm.nih.gov/pubmed/8901365>.
Go to original source...
Go to PubMed...
- JUNIPER, E. F. et al. Measuring quality of life in the parents of children with asthma. Quality of Life Research. [on-line]. 1996b, 5, 27-34. [cit. 2010-07-23]. Dostupné z: <http://www.ncbi.nlm.nih.gov/pubmed/8901364>.
Go to original source...
Go to PubMed...
- JUNIPER, E. F. How important is quality of life in pediatric asthma? Pediatric Pulmonology. [on-line]. 1997, 15, 17-21. [cit. 2010-07-23]. Dostupné z: <http://www.ncbi.nlm.nih.gov/pubmed/9316097>.
Go to original source...
- KRISHNA, S. et al. Internet-Enabled Interactice Multimedia Asthma Education Program: A Randomized Trial. Pediatrics. 2003, 111(3), 503-510.
Go to original source...
Go to PubMed...
- MOCOVÁ, E. Aký je vplyv modernej liečby bronchiálnej astmy na kvalitu života detí? Slovenský lekár. 1998, 8(5-6), 9-10.
- MUSSAFFI, H. et al. Computerised paediatric asthma quality of life questionnaires in routine care. Archives of Disease in Childhood. [on-line]. 2007, 92(4), 678-682. [cit. 2011-01-21]. Dostupné z: <http://adc.bmj.com/content/92/8/678.full.pdf>.
Go to original source...
Go to PubMed...
- POACHANUKOON, O. et al. Pediatric Asthma Quality of Life Quastionnaire: Validation in Children from Thailand. Pediatric Allergy and Immunology. [on-line]. 2006, 17(3), 207-212. [cit. 2010-07-07]. Dostupné z: <http://www.ncbi.nlm.nih.gov/pubmed/16672008>.
Go to original source...
Go to PubMed...
- REICHENBERG, K., BROBERG, A. G. The Paediatric Asthma Caregiverś Quality of Life Questionnaire in Swedish parents. Acta Pediatrica. 2001, 90, 45-50.
Go to original source...
- RUTISHAUSER, C., SAWYER, S. M., BOWES, G. Qualityof-life assessment in children and adolescents with asthma. European Respiratory Journal. [on-line]. 1998, 12, 486 - 494. [cit. 2010-07-05]. Dostupné z: <http://www.ncbi.nlm.nih.gov/pubmed/9727807>.
Go to original source...
Go to PubMed...
- VALANCOVÁ, A., GURKOVÁ, E. Vplyv ochorenia na život rodičov dieťaťa s astmou - pilotná štúdia. Profese online. [on line]. 2009, 2(2), 114-122. [cit. 2010-04-07]. Dostupné z: <http://www.pouzp.cz/data/File/valancova_final_tisk.pdf>.
Go to original source...
- ZANDIEH, F., MOIN, M., MOVAHEDI, M. Assessment of Quality of Life in Iranian Asthmatic Children, Young Adults and Their Caregivers. Iranian Journal Allergy, Asthma and Immunology. 2006, 5(2), 6, 79-83.
This is an open access article distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0), which permits non-comercial use, distribution, and reproduction in any medium, provided the original publication is properly cited. No use, distribution or reproduction is permitted which does not comply with these terms.